Showing posts with label Down syndrome Awareness. Show all posts
Showing posts with label Down syndrome Awareness. Show all posts

Friday, January 18, 2013

IQ is Just Another Number

Being an educator I know that Emma turning nine is a big deal in the school's eyes.  She no longer becomes "developmentally delayed," but an actual category or label now.  Now, every time someone picks up her IEP they will first read her IQ score. 

I had emailed the school to please send me the results before the meeting so that when I saw the numbers it woldn't be the first time.  They graciously allowed me the time to process this information. I thought I would crumble into a fine pillar of dust when I heard the news, but I didn't.  When Emma was born the one thing I wanted was for her not to have the category she is going to recieve, but to have other health impairment.  I thought this would be the worst thing for her.  It isn't.  The worst for her would be if I saw her as a number, and I don't. 

I understand that it is just a number.  But, I also know that to some people it isn't.  For some people it will be a reminder of all the things she can't do.  However, I choose to see these things.

  • A little girl who has worked so very hard to overcome the simple things we take for granted like learning to talk, walk, and read.
  • A child who belly laughs so hard that she gives her self the hiccups and we all tumble into a heap of laughter.
  • A precious girl who never, ever gives up.  She tries again. And again. And again.
  • My daughter is strong and I would like to think she gets it from me, from my example, but I draw on her strength each day.  I watch her persevere and I think if Little E can do it, so can I.
  • She has a sense of humor that invloves playing jokes, albeit, not always at the right time, but funny, nonetheless.
  • A darling, caring heart that hurts for others when they are hurt, that says, "I'm sorry" when she's wrong, and hugs those who are experiencing pain.

These things have nothing to do with the magic number that has deemed her "less."  As human beings we should never categorize or label those that are different.  She is not less.  She is not different.  She is a girl who's life isn't passing me by.  She is a girl who loves so deeply that I can only hope that my love repays what she gives.  She is a girl who will one day live on her own, have a job,  and hopefully find love. 

But she is not a number.

She is my daughter.

Little E.



Tuesday, October 2, 2012

Down syndrome Awareness 2/31

The world demands perfection. At least that is how I feel most of the time. Perfection. No blemishes.

In the world I live in I don't demand perfection. I expect you to give your best. Last month while listening to Pink's song perfect I began to reflect on the words and the world Emma lives in. Click on the link to read. Perfect

My view of the world comes from wanting to protect my child from pain. The world fails to see her many qualities that are unique to her.

I challenge you to learn more about people who live with disabilities. More than 3 million people in the U.S. are disabled either mentally or physically.

You can be the change in the world. It only starts with one person. One voice. You decide. You make the difference.

Monday, October 1, 2012

Life with a Little Something Extra Day 1/31

Last weekend Emma had her first Special Olympic event. She had a wonderful peer buddy, Miss B.  She was FABULOUS!  What I loved most about this event is that Emma was able to shine.  She felt important.  Supported by her "team." And happy. 

I hear so often that happiness is found in people with Down syndrome.  This used to really bother me and I would reply, "Absolutely, they have found that happiness is  attritubed to her extra chromosome."  Or some other snarky comment. Now I've realized that it isn't about her happiness, but the happiness she brings to others.

She loves.  She loves innocently and whole-heartedly. 

As adults we are guarded. We know what a cruel place the world really is.  We know that when you love you lose sometimes and then comes a broken heart. 

Emma hasn't experienced heart ache yet. I wish I could protect her forever so that the innocence will stay permanently. But, alas this is a part of growing up.

But, I find happiness in the fact that she is loved by many.  She finds happiness in the safety that she is accepted....for all her wonderful things.